Family stranded in Salem while raising awareness about daughter's terminal illness

Reported by: Jessica Morkert
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SALEM, Ore. -- A family seeking to spread awareness about their two-year-old daughter's illness is stuck in Salem. 

Anaya Cassin-Potts suffers from Infantile Krabbe Leukodystrophy. It is an illness that will deteriorate her brain and central nervous system.
 
Her condition could have been prevented if she had been tested at birth.

Her family has been working to spread awareness by traveling throughout North America in a handed-down mobile home. However, the mobile home broke down in Salem.  

To find out how you can help visit www.healinganaya.com.
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19 Comment(s)
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Here are the most recent story comments.View All

irishtwins21 - 11/13/2011 7:27 PM
0 Votes
Little Anaya passed away today. She will be missed. Here is the facebook page.

mrcoules - 11/13/2011 11:31 AM
0 Votes
Ignore bkgrl, ignore kendallboy, same poster, different screen names. Pray for Anaya, please read the update; http://www.facebook.com/TheAnayaInitiative?sk=wall&filter=2

mdevney77 - 11/13/2011 4:10 AM
0 Votes
bike girl,you need to get a life and not worry so much about what this family is doing,you sound stalkerish,I have learned alot from this family,Ive never heard of this condition Anaya has and am glad Ive been able to learn thanks to the wonderful family,If I could Id give the a brand new mobile home so they could continue letting everyone all over Aware of this condition,I live in salem and we welcome them with open arms,They are awesome parents and have done a remarkable job raisin Anaya,God put this family together for a reason,and for you to stick on them like white on rice, maybe you are the one who needs to get a job and a life while your at it!

mrcoules - 11/12/2011 3:25 PM
0 Votes
I have know the Cassin family for some time now, both personally and professionally. They have unfortunately been hounded by an online person for quite a while. This person uses various screen names, but pretty much states the same nonsense ad nauseum, which boils down to accusations that Anaya's parents are taking advantage of their ailing baby's condition to make life better for themselves. A completely unfounded and deplorable thing to say. This family lives daily in the shadow of death. They would move mountains if it could make their little girl get better. Instead they are faced with the reality of doing the best they can for their daughter with the time they have left, and no one, NO ONE, knows how much time they have been given. This bkgrl is just a sad soul, someone we should all recognize as the a-typical internet troll, trying to stir commotion for the pleasure of their own fractured ego. I would be interested to know who this person is, just for the fact that much of their behavior online most likely breaks at least one, if not two laws in Canada. Criminal harassment is punishable up to a 10 year term in prison. It may also constitute Criminal defamation, which can be punishable by up to 5 years in prison. If anyone knows any net trackers that are pro at IP tracing and identification, it would be a blessing to trace this person and have them answer for their rot. Otherwise, best thing would be to ignore them.

Uidiot - 11/12/2011 10:32 AM
0 Votes
Bikegirl You are a sad person that I am sure have never dealt with watching your child die from a horrible illness! YOU ARE A SAD SAD SAD Excuse for a person. It is clear from the comments you have made that this whole experience they are dealing with is not something you have ever experienced. And clearly you don't know the family like you like to suggest that you do. If this is your idea of a good way to spend your Saturday morning is by trying to tear someone down that is going through a difficult situation You really should get a life. And maybe grow a heart while you are at it. I could answer you point for point on why all the points you made were stupid but I won't because for small minded people like yourself it won't make any difference because you are filled with HATE and dare I say jealousy? It is really twisted but I think you are in some way jealous of this family. Because you sure spend a lot of time trying to tear them apart. Especially when you say this is just a vacation for them. You are really a very sick person and should seek Psychiatric help for this disturbing hobby of yours.

bree67 - 11/12/2011 9:21 AM
0 Votes
This isn’t about Bikergirl and her hate. I am sorry I fell for it; She got the attention on herself and away from the topic. This is about Anaya and her lovely life. Let us just pretend the negative people don’t exist in our reality and focus on sending love to Anaya. She is still in the hospital, but doing better today. Well, according to facebook.. Sending love and light.

cupcakelady - 11/12/2011 8:40 AM
0 Votes
Wow what a sad life you must have bikegirl. You speak as if you are the expert on what people should do when their child is dying slowly. If they choose to spend the remaining time Anaya is with them traveling all over the world what do you care? I don't care if they use my donation to eat at burger king, i give because i want to and no one forces any of us. Leaving a sick baby and going to work is horrible for any mother. It's instinct to be by their side and care for them. Knowing they might die would while you are gone would make any mother give up material life and humble herself to accept help in order to be with her baby. Who are you to judge their choices? Are you supporting them? Also, you might want to spend some time with a blind person or just read a book because lack of vision does not take away all other senses or abilities to experience earth's beauty. In fact it enhances their capacity to do so. You need to pray and ask God why it's so important to you that you believe bills should come before a child being able to die in their parent's arms. You may be the one who needs healing.

Kootenay mom - 11/12/2011 7:51 AM
1 Vote
Bikegirl,I 1) can't believe how cruel you are. Judging others does not say anything about them, it says everything about YOU! You chose to send this message at 11/11/11 at 11:01 what a beautiful energy 11/11 can be,what is wrong with you. Are from the Kootenays?Why don't you grow a spine and leave your real name so our community can put you to shame. Shame on YOU for your judgement.What ever this family has done is really their choice for what is best for their family and Anaya. Why on earth do you have such a problem with what they are doing. You must have so much hatwred for your self. I am just so discusted by your comments. Shut up you coward. I am from Castlegar and I would love to know who you are, so I could avoid you at all cost, you are a terrible person, get some help, learn to love again.

natalIed - 11/12/2011 4:26 AM
0 Votes
I also personally know this family, and agree that they do everything they do for love of their daughters. The older sister is happy, living with her father, going to school with kids she's known her whole life, visiting her grandparents on weekends, and having a normal, healthy childhood. Does she miss her mom and baby sister? Sure! But when a child has parents who don't live in the same place, they will always miss one or the other. This family is doing the best they can in an impossible situation, and whether it is the way anyone else would handle it is something I pray none of us ever have to find out.

Cuzicanthatsy - 11/12/2011 2:10 AM
0 Votes
What an amazing heart touching story!!! She is such a beautiful little girl!! I am sure that whatever decision's this mother and father had to make were very hard and they have the best intentions for thier daughter and are brave to raise awareness about this disease!! What I would like to know,is if NW RV in Salem has an Rv in stock then why don't they just donate it to these people so they can make the rest of thier journey!!?? I am sure that this company could afford to do that!! I mean,it would probably even be a tax write off for this company right?!? SOOOOOO WAKE UP NORTHWEST RV IN SALEM!!! DONATE THE RV !!!!!!!
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